Well, as crazy as life was before all of this happened, I must say that life is even crazier.  Since I last posted, so much has happened that I really do not know where to start. 

Well first of all I should explain the new look to the website.  We were trying to pick a color for some t-shirts that would coordinate with the colors of the site, and we couldn't find exactly what we wanted so we decided to change the site. We finally decided to go with all of the different blue's because it is Jenna's favorite color. She chose the design for the new site as well.

We also got a very exciting phone call a couple of weeks ago from the Make-A-Wish foundation. They got a referral from one of Jenna's nurses, so they wanted to know if it would be okay to grant her a wish. We obviously said yes, and now we are waiting for our visit from the wish granting team the first week of April or so. She has said that she wants to go to Disney, but it all depends on the Dr's approval. They like to make sure that the child is stable enough, and that it won't interfere with any treatments. She is so very excited.

We are coming right along with the cookbook. The response has been just amazing!!!!  We have received recipes from all over the United States. From friends and family, and lots of beautiful people that we do not know personally but will forever be grateful to for helping our daughter, and so many other children out there fighting this horrible disease. We were able to get a better deal on the cookbooks if we wait to submit them for print until April 1st. We got a free easel for each cookbook and about 25 cents per cookbook will be saved. It doesn't seem like a lot but in the eyes of a child fighting this disease it is pure gold! So it might be closer to mid-May before we receive the finished copies. We are still working on Pre-Sale orders right now, so we can have a little better idea of how many cookbooks to order, so if anyone is interested in helping with that, you can e-mail me and let me know and I will get a packet of info to you.

We are trying to plan a 5k walk/Run for sometime in June. We have never done anything like this before so if anyone has any suggestions or would be willing to help plan, we would love to have you.

I have also started working with another group of families that have done a lot of research into what the next big step into finding kinder, gentler treatments or a cure will be. We are now approaching our state senator Tom Harkin who is the chairman of the Senate Appropriations Committee, to try to get him to get on the agenda a request for the National Institute of Health to set up a Comprehensive Research Plan for JPA's and PlGA's(pediatric low grade astrocytoma's). If we can get Senator Harkin on board, we will have made a huge leap of progress. This could mean so much for our kids. So as of right now I am working up my courage to take the next step to call Washington DC and pray that someone will hear me and that our story will touch the right heart. It seems like it is all a game of scratching backs with the Senate, but I won't stop until someone listens.

<>We also were featured on the front page of one of our local small town newspapers last week. They did a really great job of telling our story and helping to get the word out there.

<>Well I guess that sums up the last couple of weeks at our house. I will post more soon.