Jenna's Wish

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Wednesday, April 30, 2008

Our Decision
Well, we went up to Mayo and consulted with the Radiation Oncologist up there about the Gamma Knife Radiation. Unfortunately we didn't hear what we wanted to hear. We walked away with the idea that there are many more risks with the radiation. We know that the main risk with the surgery is weakness on her right side, they couldn't be so specific with the radiation. More than likely she would have to have surgery to place a shunt in her brain anyway if we do the radiation, because most all tumors swell and she has already started with some hydrocephalus, so they would have to place the shunt to help the fluid drain. There is a possibility that since the tumors swell first that she would have to be on steroids for awhile, and that carries plenty of risks and complications also. We know that at this time surgery is the only known 'cure' for this type of tumor(by cure I mean that if all of it is removed sometimes they don't grow back)so we decided that surgery is our best option right now.  So, we have scheduled her for surgery on June 3 at Nationwide Children's Hospital in Columbus Ohio. It will be so hard for us to be so far away, but we have really developed a trust with Dr. Raffel. We feel that there is a reason that he got offered the Chief of Pediatric Neurosurgery at the 12th ranked hospital in the nation for pediatrics. We also know that this isn't really in his hands anyway. We just ask that you pray that God's will is for Jenna to come through this physically as well as she did last time, with the total tumor being removed this time. We are just going to try to enjoy the next few weeks and try to keep her mind off of it and let her be the kid that she should be able to be. I will post again when we have all of the details of the surgery. Thank you for all of your thoughts and prayers.
9:55 am cdt


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