I apologize for the delay in a post, but I really had to figure out what I should post. Jenna did
amazing with the MRI. She is a pro at it now and I think we got through it in record time. We met with Dr. Raffel and he showed
us the new scan and said that it looks good. But he also showed us the scan from September of last year, which would have
been 3 months post surgery and he said that he is still concerned with the area that was enhancing on that scan. The area
of concern has not enhanced on any of her scans since then, but he is concerned because he doesn't know what it was or why
or how it just dissappeared. He showed more concern at this apointment then we have seen in quite some time, which leaves
us very confused. We left the last appointment on cloud 9 because he said that we could go to yearly scans after this scan,
but he now wants us to stay on 6 month scans, which personally is better for me, of course Jen hates it. We feel like
it is good news but are still very confused. He said he would like to be able to tell us that it will never come back, but
he can't, for obvious reasons. Also the longer we go with no growth the better the chances are that it won't come back.
I sort of feel like this is a reality check for us, and we have to remember that this is an orphan disease
and we do not know enough about it and why certain things happen. We have sort of spent the last 6 months living like
"a normal family" and this just reminds us that our lives have forever been changed and will be different forever.
We just have to try to keep things in perspective and remember every moment how blessed we have been through all of this and
how well she has done, compared to other children fighting the very same disease.
Please continue
to pray for us and please pray for our little buddy Ryan. We were blessed to get to spend the last two evenings with him and
his family and can't tell you how much this family means to us!! He is an amazing little boy with strength like no one I have
ever known (his site is www.caringbridge.org/visit/ryanhardy)!
Thank you all for your prayers and support!!
P.S. I am going to post some new pics of Jen and Dr. Raffel and of our time with the Hardy's in Ohio.
